Rare Diseases in Canada: Expert Panel Shines Spotlight on the Impact of Sustained Research and Innovation – Health Research Innovation Portal
OTTAWA, February 29, 2024 – In anticipation of Rare Disease Day 2024, Research Canada partnered with the Honourable Senator Marie-Françoise Mégie to host on Tuesday, February 27, a virtual panel event featuring five renowned experts representing various national health organizations, universities, and institutes across Canada. Rare Diseases in Canada This panel discussion, sponsored by Innovative Medicines Canada and the Stem Cell Network , brought together leading researchers, health innovation stakeholders, and policy makers to discuss challenges in the diagnosis and treatment of rare diseases, access to specialized care and therapies, funding for research and development, and strategies for improving patient support and advocacy. “Sustained health research and innovation holds promise for improving patient outcomes and quality of life for the countless Canadians directly and indirectly affected by rare diseases,” said Alison Evans, Research Canada President and CEO . “This is a critical area of health research and innovation, and it was an honour to moderate this lively and important discussion.” Thank you to all our generous event Sponsors, including Cystic Fibrosis Canada , AstraZeneca Canada , and BD Canada . Research Canada Virtual Panel: Rare Diseases in Canada
Research Canada Virtual Panel: Rare Diseases in Canada
Hosted by the Honourable Senator Marie-Françoise Mégie HOST: Senate of Canada Senator Marie-Françoise Mégie
MODERATOR: Research Canada Alison Evans
PANELLISTS: Dr. Natasha Chang McGill University Area of Research: Muscular Dystrophy
Dr. Isaac Odame SickKids Research Institute Area of Research: Sickle Cell
About Research Canada Research Canada is a national alliance dedicated to increasing investments in health research through collaborative advocacy and engaging government, academia, industry and non-profit sectors to build support for long-term health research funding. For more information, visit rc-rc.ca. For inquiries: Christie Tomkins Manager of Policy and Public Affairs 613-234-5129 [email protected]